Finding information about the disease and additional family resources was a challenge when Zoe was first diagnosed. This page will be continually updated with resources, research and new information about CRMO/CNO as it becomes available.


CRMO, A Rare Disease Among Children
CRMO/CRNO Explained


CRMO Facebook Page

A safe place for patients and families dealing with Chronic Recurrent Multifocal Osteomyelitis (CRMO) to find support, compassion and information.

CRMO Awareness Website

Webpage with detailed information and shares personal stories about CRMO/CNO

Kaila's Comfort

A 501(c)(3) non-profit organization that brings awareness and supports families of CRMO/CNO around the world

Seattle Children's Hospital

Seattle area hospital supporting CRMO research and awareness

Rare Connect

Blog page that posts information about CRMO

Rare Foundation Alliance

Connect, empower and inspire the rare disease community

Make Your Impact!

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