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What I’ve Learned About Being A Minority In The Rare Disease Community

What I’ve Learned About Being A Minority In The Rare Disease Community

When I was younger, I thought that Tylenol, Robitussin, and a nap could cure anything. If I had a headache, my mom would give me a Tylenol and tell me to go lie down. If I had a cold, it would be Robitussin and several naps. No matter the illness, this magical trio would swoop in and save the day. I carried this belief into my adult life and when I became a mother, I kept the generational traditions going with my children.

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The True Definition of a Warrior

The True Definition of a Warrior

From the moment I saw the movie Star Wars as a child, I became a life-long fan of warriors. Watching these specimens of super-human strength overcome incredible odds against the toughest of enemies gave me hours of endless joy. In fact, many of my childhood scrapes and bruises came from my attempts to wield a light saber and use the force against the invisible enemies that lived in my closet. In my eyes, a warrior was someone with no fear, no doubt and who always knew exactly what to do in every situation. Fast forward a few years

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